Research

In addition to providing high-quality, culturally competent healthcare and supportive services targeted to LGBTQ communities and people living with HIV/AIDS, Callen-Lorde also serves as a center of excellence – helping to train the future leaders in LGBT health while blazing new trails through research and other strategic partnerships. Below are our current research studies:

 


LEGACY

Callen-Lorde Community Health Center and Fenway Health have launched an exciting new study focusing on transgender and non-binary people’s health called The LEGACY Project and we need your help to make it a success!

The goal of this multi-site study — which is being led, designed, and run by transgender and non-binary people — is to examine how medical gender affirmation impacts quality of life, mental health outcomes, and HIV-related outcomes among 4,500 transgender and non-binary adult patients from Callen-Lorde and Fenway Health in Boston, Massachusetts.

The LEGACY Project will be integrated with medical care at Callen-Lorde and Fenway. De-identified data for this study will be collected from patients’ electronic medical records. Additionally, patients will be asked to complete three surveys over the course of one year to help supplement this information. Patients will have to consent to take the additional surveys, and have the option to take the surveys on site or at home. We will be enrolling patients from February 2019 until January 2020.

Why “LEGACY,” you ask? The hard-fought rights of transgender and non-binary people have been under attack in recent years. The trending hashtag #WontBeErased was created in support of transgender and non-binary folks. We chose “LEGACY” to echo this sentiment — that the legacy and health of transgender, non-binary, and gender diverse people will not be erased or silenced.

If you have any questions about the study or would like to enroll at the Callen-Lorde site, please contact LEGACY@callen-lorde.org.

We hope you’ll join us in building the LEGACY of transgender and non-binary health!

Research reported in this article was funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (AD-2017C1-6569). The statements in this article are solely the responsibility of the authors and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute (PCORI), its Board of Governors or Methodology Committee.


LITE

Leading Innovation for Transgender Women’s Health and Empowerment (LITE) is the first cohort study of transgender women and transfeminine people in the US. This project is an exciting new NIH-supported research study that will enroll 1,100 transgender women across five US cities (Boston, New York, Baltimore-Washington DC, Atlanta and Miami) beginning in early 2018.

This is a cohort study, which means we will check-in with participants approximately every 3 months for up to 2 years, with incentives given at each check-in up to $450. The study focuses on sexual health and HIV in order to learn about engagement in HIV prevention and treatment; however, we will also be collecting data on a wide range of topics in efforts to improve the health and wellness of these populations over time. This project is a partnership between Johns Hopkins Bloomberg School of Public Health, Boston Children’s Hospital, Fenway Health, Harvard University T.H. Chan School of Public Health, Callen-Lorde Community Health Center, University of Miami, Emory University and Grady Memorial Hospital, and Whitman Walker Health.

For information or to enroll, contact Sadath Ahmed, Clinical Research Supervisor: sahmed@callen-lorde.org or phone the STUDY LINE 212-271-7242.


MY PEEPS

MyPEEPS (Male Youth Pursuing Empowerment, Education and Prevention around Sexuality) is a smartphone app created to empower young guys who like other guys to make safe, educated decisions about their sexual health.

People who use the app will complete activities and games to learn about HIV and other sexually transmitted infections (STIs), safe sex, effective communication in relationships, and much more.

Participants in the study are eligible to earn up to $275 in compensation.

Participating in the study will involve at least one in-person visit where you will take a survey on a tablet or computer.

We will also ask you to complete surveys every 3 months for up to 1 year.

At some point during the 1 year, we will give you access to the MyPEEPS app to use.

To see if you might be eligible to participate, call 212.305.8198 or visit mypeepsmobile.org


THE PRIDE STUDY

The PRIDE Study is the first large-scale, long-term health study of people who identify as lesbian, gay, bisexual, transgender, queer (LGBTQ), or another sexual or gender minority.

By participating in The PRIDE Study over time, your unique story teaches us about the health and well-being of LGBTQ people like you. Make your voice heard!

Join at pridestudy.org or call 855.421.9991